<?xml version="1.0" encoding="UTF-8"?>
<rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:wfw="http://wellformedweb.org/CommentAPI/"
	xmlns:dc="http://purl.org/dc/elements/1.1/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	xmlns:sy="http://purl.org/rss/1.0/modules/syndication/"
	xmlns:slash="http://purl.org/rss/1.0/modules/slash/"
	xmlns:georss="http://www.georss.org/georss" xmlns:geo="http://www.w3.org/2003/01/geo/wgs84_pos#" xmlns:media="http://search.yahoo.com/mrss/"
	>

<channel>
	<title>Blythe's Blog &#187; Alzheimer&#8217;s</title>
	<atom:link href="http://blythelight.wordpress.com/category/alzheimers/feed/" rel="self" type="application/rss+xml" />
	<link>http://blythelight.wordpress.com</link>
	<description>assorted creative pursuits, sprinkled with a lot of garlic</description>
	<lastBuildDate>Wed, 22 Apr 2009 05:31:16 +0000</lastBuildDate>
	<generator>http://wordpress.com/</generator>
	<language>en</language>
	<sy:updatePeriod>hourly</sy:updatePeriod>
	<sy:updateFrequency>1</sy:updateFrequency>
	<cloud domain='blythelight.wordpress.com' port='80' path='/?rsscloud=notify' registerProcedure='' protocol='http-post' />
<image>
		<url>http://www.gravatar.com/blavatar/14094d7afe55a869b7b3c263013a299a?s=96&#038;d=http://s.wordpress.com/i/buttonw-com.png</url>
		<title>Blythe's Blog &#187; Alzheimer&#8217;s</title>
		<link>http://blythelight.wordpress.com</link>
	</image>
			<item>
		<title>Be Here Now</title>
		<link>http://blythelight.wordpress.com/2009/04/21/be-here-now/</link>
		<comments>http://blythelight.wordpress.com/2009/04/21/be-here-now/#comments</comments>
		<pubDate>Wed, 22 Apr 2009 05:31:16 +0000</pubDate>
		<dc:creator>blythelight</dc:creator>
				<category><![CDATA[Alzheimer's]]></category>
		<category><![CDATA[LUG Nutz]]></category>
		<category><![CDATA[Taking care of parents]]></category>
		<category><![CDATA[dementia]]></category>
		<category><![CDATA[aging]]></category>
		<category><![CDATA[caring for parents]]></category>
		<category><![CDATA[coping]]></category>
		<category><![CDATA[forgetfulness]]></category>
		<category><![CDATA[living in the past]]></category>
		<category><![CDATA[memory loss]]></category>
		<category><![CDATA[regret]]></category>
		<category><![CDATA[senility]]></category>

		<guid isPermaLink="false">http://blythelight.wordpress.com/?p=64</guid>
		<description><![CDATA[See HT Wilson's poem, "Cancion" on wordswithnonames.wordpress.com. To regret, you must have a memory of something you did or didn't do. Sometimes it might be nice to live in the past in a simpler, happier, childhood time. Then again, maybe the past is better left behind. Maybe the now is better.<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=blythelight.wordpress.com&blog=2111760&post=64&subd=blythelight&ref=&feed=1" />]]></description>
			<content:encoded><![CDATA[<div class='snap_preview'><br /><p>I stumbled across a beautiful poem by HT Wilson on a blog called &#8220;<a title="Words with No Names - Cancion" href="http://wordswithnonames.wordpress.com/2009/04/22/cancion/">Words With No Names</a>.&#8221; The poem is called Cancion.</p>
<p>This verse particularly touched me:</p>
<p style="margin-bottom:0;">Looking straight ahead</p>
<p style="margin-bottom:0;padding-left:30px;">she laments</p>
<p style="margin-bottom:0;padding-left:60px;">“I don’t know what’s</p>
<p style="margin-bottom:0;padding-left:60px;">worth remembering anymore.</p>
<p style="margin-bottom:0;padding-left:30px;">I don’t know why I stored</p>
<p style="margin-bottom:0;">any of these thoughts.&#8221;</p>
<p style="margin-bottom:0;">
<p style="margin-bottom:0;">
<p style="margin-bottom:0;">* * *</p>
<p style="margin-bottom:0;">It left me thinking -</p>
<p style="margin-bottom:0;">What was it like when my mother knew she was losing her mind (and also aware that she was powerless to stop it)?</p>
<p style="margin-bottom:0;">What was it like when it was so difficult to remember to put on the second sock (did it really matter?), but so easy to find herself huddled in a cornfield, singing songs to quiet her little brother, so her drunken father did not find them?</p>
<p style="margin-bottom:0;">Some might live in the laughter of their youth &#8211; but she didn&#8217;t play those childhood games.</p>
<p style="margin-bottom:0;">Could she have done something differently had she known this is where she would be? <em>Would </em>she have?</p>
<p style="margin-bottom:0;">Could she have taken &#8220;possession of her dreams&#8221; a &#8220;thousand loves away?&#8221;</p>
<p style="margin-bottom:0;">How she regretted decisions that changed our lives!</p>
<p style="margin-bottom:0;">But did it really matter when the outcome was the same, regardless of the road taken?</p>
<p style="margin-bottom:0;">Alzheimer&#8217;s is the thief of thieves&#8230;stealing our minds right from under our noses! (no wonder we couldn&#8217;t find them!)</p>
<p style="margin-bottom:0;">Our minds are our tie to reality &#8230;  they are also our tie to unreality. When the mind is gone (and with it, all our memories), what do we have? Who are we then?</p>
<p style="margin-bottom:0;">And is it not ironic, that if we get dementia or Alzheimer&#8217;s or any other form of senility, there is seemingly no escape &#8230; and yet the condition itself is an escape?</p>
<p style="margin-bottom:0;">Is it so bad to live awhile longer in a memory of our choosing?</p>
<p style="margin-bottom:0;">And if we are still able to reflect, will we say the past was &#8220;enough&#8221; &#8211; or will we say there was &#8220;enough&#8221; of the past.</p>
<p style="margin-bottom:0;">Maybe the now is better.</p>
<p style="margin-bottom:0;">* * *</p>
<p style="margin-bottom:0;"><em>Thank you, HT Wilson.</em></p>
Posted in Alzheimer's, dementia, LUG Nutz, Taking care of parents Tagged: aging, Alzheimer's, caring for parents, coping, dementia, forgetfulness, living in the past, memory loss, regret, senility <a rel="nofollow" href="http://feeds.wordpress.com/1.0/gocomments/blythelight.wordpress.com/64/"><img alt="" border="0" src="http://feeds.wordpress.com/1.0/comments/blythelight.wordpress.com/64/" /></a> <a rel="nofollow" href="http://feeds.wordpress.com/1.0/godelicious/blythelight.wordpress.com/64/"><img alt="" border="0" src="http://feeds.wordpress.com/1.0/delicious/blythelight.wordpress.com/64/" /></a> <a rel="nofollow" href="http://feeds.wordpress.com/1.0/gostumble/blythelight.wordpress.com/64/"><img alt="" border="0" src="http://feeds.wordpress.com/1.0/stumble/blythelight.wordpress.com/64/" /></a> <a rel="nofollow" href="http://feeds.wordpress.com/1.0/godigg/blythelight.wordpress.com/64/"><img alt="" border="0" src="http://feeds.wordpress.com/1.0/digg/blythelight.wordpress.com/64/" /></a> <a rel="nofollow" href="http://feeds.wordpress.com/1.0/goreddit/blythelight.wordpress.com/64/"><img alt="" border="0" src="http://feeds.wordpress.com/1.0/reddit/blythelight.wordpress.com/64/" /></a> <img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=blythelight.wordpress.com&blog=2111760&post=64&subd=blythelight&ref=&feed=1" /></div>]]></content:encoded>
			<wfw:commentRss>http://blythelight.wordpress.com/2009/04/21/be-here-now/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
	
		<media:content url="http://1.gravatar.com/avatar/d9fec117a8c9f6a46d5dc7b29f862c9b?s=96&#38;d=identicon&#38;r=G" medium="image">
			<media:title type="html">blythelight</media:title>
		</media:content>
	</item>
		<item>
		<title>Steadfast as Changing Tides</title>
		<link>http://blythelight.wordpress.com/2009/03/17/steadfast-as-changing-tides/</link>
		<comments>http://blythelight.wordpress.com/2009/03/17/steadfast-as-changing-tides/#comments</comments>
		<pubDate>Tue, 17 Mar 2009 17:45:55 +0000</pubDate>
		<dc:creator>blythelight</dc:creator>
				<category><![CDATA[Alzheimer's]]></category>
		<category><![CDATA[Taking care of parents]]></category>
		<category><![CDATA[dementia]]></category>
		<category><![CDATA[caring for parents]]></category>
		<category><![CDATA[coping]]></category>
		<category><![CDATA[dealing with grief]]></category>
		<category><![CDATA[divine guidance]]></category>
		<category><![CDATA[gifts from our parents]]></category>
		<category><![CDATA[helping someone die]]></category>
		<category><![CDATA[memory loss]]></category>
		<category><![CDATA[revisiting the past]]></category>
		<category><![CDATA[understanding what is important]]></category>
		<category><![CDATA[universal truths]]></category>

		<guid isPermaLink="false">http://blythelight.wordpress.com/?p=58</guid>
		<description><![CDATA[In coping with grief over loss of a loved one, it sometimes helps to revisit where you've been together. Those memories can be a source of joy and also of new insight into what is important in life and what gifts that person may have given you through those shared experiences.<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=blythelight.wordpress.com&blog=2111760&post=58&subd=blythelight&ref=&feed=1" />]]></description>
			<content:encoded><![CDATA[<div class='snap_preview'><br /><p><img class="size-medium wp-image-60 alignleft" style="margin:3px;" title="Sunset at low tide" src="http://blythelight.files.wordpress.com/2009/03/img_2485.jpg?w=343&#038;h=229" alt="Sunset at low tide" width="343" height="229" /><br />
Sometimes things we do take us over familiar pathways that allow us to see them in a different light.</p>
<p>I recently found myself taking the exact same road and turnoffs to where my mother used to live. We were headed west to spend a mini-vacation at a beachside get-away, all to ourselves.  Our destination was actually further north; I have not yet brought myself to return to where she lived for so many years. I did not grow up there; I would not know anyone there today; but it was a place I had spent many weekends while my children were young, and just the thought of going there brings back a myriad of conflicting images and feelings.</p>
<p>It was like yesterday, knowing where to turn, knowing the small pit stops along the way, where to stop for lunch, where the bridges crossed the sloughs.</p>
<p>Admittedly, my mother and I did not always get along. I choose now to remember the good things about that time in our lives.</p>
<p>She loved the outdoors and particularly, the ocean. She loved to walk along the beach and feel the wind in her face. We would gather around the beach fires with friends, have picnics, fly kites, and on special occasions, watch fireworks. In my absence, she kept me posted on various changes around the bird feeder.  During the winter storms, she would call me and tell me that the snowy plovers were huddled in her front yard. That&#8217;s how we knew it was particularly rough out there.</p>
<p>My mother, a retired nurse, never really quit nursing. Whether feeding the birds or baking for assorted outreach organizations, she was always lending a helping hand.  She gave money to her neighbor dying of cancer to help him buy the drugs he couldn&#8217;t afford so he could have one last Father&#8217;s day with his family.  She volunteered to help people die.</p>
<p>Someone had to be there to help her die, too, and that person was me.</p>
<p>It&#8217;s not an easy thing to help someone die, especially someone you love. It is gut-wrenching. It made me question the inner core of each and every one of my beliefs.</p>
<p>Without a certain chain of events, this would have been logarithmically more difficult. At the age of 70, Husband #3 left her for an old childhood sweetheart; she floundered adrift for awhile, but then gathered her wits and her courage and took a gamble with someone who painted something he could not possibly deliver; in the process, she sold her home of many years by the sea and moved inland, just over an hour from where we live. And that gamble, which proved disastrous, was exactly what was needed for me to be able to help her during her final days.</p>
<p>Whether you believe in divine guidance or whether you believe in happenstance, I have come to recognize that this was just one of many &#8220;coincidences&#8221; that happened at just the right time in just the right place for things to work out just right.  It is not for me to say what is real or what is not, but aren&#8217;t our lives far richer by believing in something that connects us all? That this chain of events should happen just as they did was quite remarkable. I am still incredulous. I am still grateful.</p>
<p>And on our recent weekend &#8220;getaway,&#8221; I looked across the span of that wide open beach with the tide lapping the shore &#8211; so very much like the one where I had stood so many times with my mother &#8211; and I thought &#8211; Mom, you gave us something really special, just by being who and where you were, and I am still making sense of it all. You gave us fun memories with our children &#8211; your children&#8217;s children &#8211; the chance to run away from an oncoming wave, to fly a kite high in the sky, to build sea monsters in the sand, and to try to dig a hole to the other side of the earth.</p>
<p>But you gave us something more. Something that dawns on us as we watch the tides roll in and ebb away twice each day, as the sun sets on one side while the moon rises on the other, as we turn toward the light in the morning and turn away at dusk, and as the hardened beach grasses hold strong to the dunes even as they bend with the wind and as the sands shift around them.</p>
<p>That&#8217;s how we were. We were those colorful kites flying high amidst scattering clouds; we were the spinners twirling in a blur with ribbons flapping wildly behind us; we were the flock of Sanderlings suddenly flashing silver in the light, the gulls scrapping over a broken crab, the snowy plover hunkering down in the cold.</p>
<p>We were and are the breathing of the ocean. We are in the wind. We are the sand that changes but still anchors the land. We are the tides, coming and going but always here. Steadfast. Forever.</p>
<p>Thank you, Mom.</p>
Posted in Alzheimer's, dementia, Taking care of parents Tagged: caring for parents, coping, dealing with grief, divine guidance, gifts from our parents, helping someone die, memory loss, revisiting the past, understanding what is important, universal truths <a rel="nofollow" href="http://feeds.wordpress.com/1.0/gocomments/blythelight.wordpress.com/58/"><img alt="" border="0" src="http://feeds.wordpress.com/1.0/comments/blythelight.wordpress.com/58/" /></a> <a rel="nofollow" href="http://feeds.wordpress.com/1.0/godelicious/blythelight.wordpress.com/58/"><img alt="" border="0" src="http://feeds.wordpress.com/1.0/delicious/blythelight.wordpress.com/58/" /></a> <a rel="nofollow" href="http://feeds.wordpress.com/1.0/gostumble/blythelight.wordpress.com/58/"><img alt="" border="0" src="http://feeds.wordpress.com/1.0/stumble/blythelight.wordpress.com/58/" /></a> <a rel="nofollow" href="http://feeds.wordpress.com/1.0/godigg/blythelight.wordpress.com/58/"><img alt="" border="0" src="http://feeds.wordpress.com/1.0/digg/blythelight.wordpress.com/58/" /></a> <a rel="nofollow" href="http://feeds.wordpress.com/1.0/goreddit/blythelight.wordpress.com/58/"><img alt="" border="0" src="http://feeds.wordpress.com/1.0/reddit/blythelight.wordpress.com/58/" /></a> <img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=blythelight.wordpress.com&blog=2111760&post=58&subd=blythelight&ref=&feed=1" /></div>]]></content:encoded>
			<wfw:commentRss>http://blythelight.wordpress.com/2009/03/17/steadfast-as-changing-tides/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
	
		<media:content url="http://1.gravatar.com/avatar/d9fec117a8c9f6a46d5dc7b29f862c9b?s=96&#38;d=identicon&#38;r=G" medium="image">
			<media:title type="html">blythelight</media:title>
		</media:content>

		<media:content url="http://blythelight.files.wordpress.com/2009/03/img_2485.jpg?w=300" medium="image">
			<media:title type="html">Sunset at low tide</media:title>
		</media:content>
	</item>
		<item>
		<title>Happy Valentine&#8217;s Day, Mom</title>
		<link>http://blythelight.wordpress.com/2009/02/14/eternal-lov/</link>
		<comments>http://blythelight.wordpress.com/2009/02/14/eternal-lov/#comments</comments>
		<pubDate>Sun, 15 Feb 2009 02:41:28 +0000</pubDate>
		<dc:creator>blythelight</dc:creator>
				<category><![CDATA[Alzheimer's]]></category>
		<category><![CDATA[Taking care of parents]]></category>
		<category><![CDATA[dementia]]></category>

		<guid isPermaLink="false">http://blythelight.wordpress.com/?p=55</guid>
		<description><![CDATA[Hey, Mom &#8211; It&#8217;s Valentine&#8217;s Day. The day after my birthday. You forgot my birthday the last few years, but it&#8217;s ok. I didn&#8217;t want to make you feel bad by reminding you. And now you&#8217;ve been gone for over a year. Not a day has gone by that I haven&#8217;t thought of you. Now [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=blythelight.wordpress.com&blog=2111760&post=55&subd=blythelight&ref=&feed=1" />]]></description>
			<content:encoded><![CDATA[<div class='snap_preview'><br /><p>Hey, Mom &#8211; It&#8217;s Valentine&#8217;s Day. The day after my birthday. You forgot my birthday the last few years, but it&#8217;s ok. I didn&#8217;t want to make you feel bad by reminding you. And now you&#8217;ve been gone for over a year. Not a day has gone by that I haven&#8217;t thought of you. Now I understand how love is eternal. Not to complain, but I have the flu, and I really miss you. Did I mention it&#8217;s Valentine&#8217;s Day?</p>
Posted in Alzheimer's, dementia, Taking care of parents  <a rel="nofollow" href="http://feeds.wordpress.com/1.0/gocomments/blythelight.wordpress.com/55/"><img alt="" border="0" src="http://feeds.wordpress.com/1.0/comments/blythelight.wordpress.com/55/" /></a> <a rel="nofollow" href="http://feeds.wordpress.com/1.0/godelicious/blythelight.wordpress.com/55/"><img alt="" border="0" src="http://feeds.wordpress.com/1.0/delicious/blythelight.wordpress.com/55/" /></a> <a rel="nofollow" href="http://feeds.wordpress.com/1.0/gostumble/blythelight.wordpress.com/55/"><img alt="" border="0" src="http://feeds.wordpress.com/1.0/stumble/blythelight.wordpress.com/55/" /></a> <a rel="nofollow" href="http://feeds.wordpress.com/1.0/godigg/blythelight.wordpress.com/55/"><img alt="" border="0" src="http://feeds.wordpress.com/1.0/digg/blythelight.wordpress.com/55/" /></a> <a rel="nofollow" href="http://feeds.wordpress.com/1.0/goreddit/blythelight.wordpress.com/55/"><img alt="" border="0" src="http://feeds.wordpress.com/1.0/reddit/blythelight.wordpress.com/55/" /></a> <img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=blythelight.wordpress.com&blog=2111760&post=55&subd=blythelight&ref=&feed=1" /></div>]]></content:encoded>
			<wfw:commentRss>http://blythelight.wordpress.com/2009/02/14/eternal-lov/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
	
		<media:content url="http://1.gravatar.com/avatar/d9fec117a8c9f6a46d5dc7b29f862c9b?s=96&#38;d=identicon&#38;r=G" medium="image">
			<media:title type="html">blythelight</media:title>
		</media:content>
	</item>
	</channel>
</rss>